The role of CYCW in Paediatric Palliative Care

Reference list (poster)

• Definition of paediatric palliative care and inclusion of family (1)
• Children’s right to palliative care (2)
• Under resourcing of paediatric palliative care (3)

1. Knapp CAaC, N. Family Support Services in Pediatric Palliative Care. American Journal of Hospice & Palliative Medicine. 2009;26(6):476-82.
2. Benini F, Vecchi R, Orzalesi M. A charter for the rights of the dying child. The Lancet. 2014;383(9928):1547-8.
3. Open-Society-Public-Health-Program. Children’s Palliative Care and Human Rights. PUBLIC HEALTH FACT SHEET [Internet]. 2015:[1-4 pp.]. Available from: https://www.opensocietyfoundations.org/uploads/2d02a07d-c1a0-4474-8c63-17ec62b00056/childrens-palliative-care-human-rights-20151008.pdf.



Study updates

○ May 2022 - Focus groups & data analysis. Initial dissemination of results for input (conference poster).
○ July 2022 - Identify relevant literature from gaps & needs.
○ August 2022 - Design programme for practice.